A FAMILY of a local little boy with a rare genetic condition has been left overwhelmed by the generosity of their friends from the Malpas community.

Louis Perrin, four, who now lives in Wrexham, suffers from TUBA1A, and he has epilepsy and cerebral palsy.

Aaron, Louis’ father, was a teacher at Malpas Alport Primary School, and has a lot of connections to the community - and they have provided huge support since they found out about his news.

He said: “I used to work in Malpas, and that’s how I know the community so well.

“That’s where I started my career and my family, now I moved to being a headteacher in Nantwich and my wife is a police officer for North Wales."

Louis, a football lover, is in a wheelchair. The family hopes to use the money raised to build a bedroom on the ground floor, a wet room, and a way for him to access the garden.


Aaron added: “ We have looked at all options available, including moving house.

“But moving house moves the problem and there are no ready-made, disabled friendly, affordable homes.

“We just need to do get the work done and after that we can just maintain the equipment.”

Aaron said Louis is growing up and is wanting his independence, he loves to play outside, and have relaxing time away from the adults, loves disco light and is an avid fan of football – as he loves watching Wrexham AFC with his brother.

Whitchurch Herald: Louis at a football game.Louis at a football game. (Image: Aaron Perrin)

His friend, whom he met at the school, Claire Meyers, is one of the people who have offered to help and she is organising one of the many events that will be helping the family adapt their home to Louis’ needs.

The father added: “I am blown away to be honest.

“It’s been six year since I left Malpas – but I am already seeing a lot of people getting involved.

“When we were in Malpas we only had our oldest son Teddy so they don’t really know Louis that much.

“I am just so blown away by the support and the kindest.”

He explained that Claire was very quick to get in touch and to organise a charity event to raise money.

Whitchurch Herald: Louis at home.Louis at home. (Image: Aaron Perrin)

Aaron added: “She got in touch straight away and she was so nice and kind to us.”

“The Government couldn’t help us – and sadly they can’t help a lot of us.

The family have organised a GoFundMe page, and are hoping that people’s kindness will help them in achieving a better life for Louis.

Claire’s coffee morning is set to take place at Community Church Hall in Malpas from 10am until 12pm on Friday, February 23.

She said: “They are so close to me – Aaron was my son’s teacher.

“I just want to help in any way I can and make life a little easier for the family and Louis.”